"Often this speech about the "other" annihilates, erases. No need to hear your voice when I can talk about you better than you can speak about yourself. No need to hear your voice when I can talk about you better than you can speak about yourself. No need to hear your voice. Only tell me about your pain."
- bell hooks, (1989, p.16) in Framework: The Journal of Cinema and Media
What are the implications of the Neurodiversity paradigm for research?
With the uptick in neurodiversity-lite and the uncertainty brought on by an emerging self-definition, it can be challenging to leverage Neurodiversity to produce humanizing research. Here are a few tenets that have guided my practice which I offered in my most recent talk:
Critical Neurodiversity:
Is a critical framework designed to trouble ‘normal’ in all its forms
Shifts the critical gaze away from the disabled bodymind towards structures and systems of power
Views neurotypicality/neuro-normativity as a system of power
Recognizes neurotypicality as a historically situated and socially reified construct which privileges certain ways of being while marginalizing others
Recognizes neurotypicality as one aspect of an interlocking system of power which reinforces and is reinforced by gender, race, class, etc.
The Neurodiversity Paradigm emerged from the autistic community in the 90’s as a way to talk about their experiences to each other. It is the autistic community’s language for their experiences. It also directly builds upon the work of feminist, Black feminist, queer, and disability studies scholars - all of whom directly trouble what we think of as ‘normal’.
Neurodiversity is a critical paradigm. Neurodiversity is a queering paradigm. It is not meant to be neutral.
Thus, Neurodiversity Research:
Focuses on systems of power
and the mechanisms which reinforce them
Troubles false neutrality
of the medical model of disability & scientific research
Attends to the problematic history
of research that has been produced about neurodivergent folx
Is not neutral
and invites researchers to engage in reflection of their own positionality
Actively works to include and amplify
the voices and perspectives of neurodivergent folx who have historically been excluded from the research process
Neurodiversity Research DOES NOT:
Reinforce ‘Otherness’
by comparing ND folx to some neurotypical standard/ performance
Reproduce Trauma Narratives
by emphasizing harm, damage, or other deficit-based narratives
Engage in a surface-level application
by using the language of neurodiversity while ignoring its tenets
Present as neutral or ‘objective’
as research neutrality is directly troubled
Ignore historical context
as neurodiversity research directly attends to the history of dehumanization
These are examples of neurodiversity-lite and are a misuse of Neurodiversity.
For those interested in advancing Neurodiversity Studies as an emerging field of scholarship, I highly recommend Neurodiversity Studies, edited by H. Rosqvist, N. Chown, & A. Stenning and the Routledge Handbook of Critical Autism Studies edited by D. Milton and S. Ryan. Both are fantastic resources.